waiting for summer WHN<p>Visit our comprehensive Long COVID resource page for essential information.</p><p><a href="https://whn.global/long-covid/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">whn.global/long-covid/</span><span class="invisible"></span></a></p><p><a href="https://forall.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://forall.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a></p>
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#longcovidawarenessday
32 posts · 25 participants · 5 posts today
Broadwaybabyto<p>This <a href="https://zeroes.ca/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> I’m reflecting on how many people have been let down by governments, public health & medical establishments</p><p>How Covid has been downplayed, airborne spread ignored & vaxx and relax strategies pushed for the sake of capitalism</p><p>How many have Long Covid because of this?</p><p>Those of us who were disabled before the pandemic could see this wave of chronic illness coming - and many of us have been screaming from the top of our lungs the last 5 years. </p><p>Begging people not to take their health for granted & to wear a mask and protect themselves. </p><p>Warning them that there are no do-overs once you become chronically ill. Unfortunately very few people are listening - and many won’t understand the true devastation of <a href="https://zeroes.ca/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> until it directly impacts them. At which point it’ll be too late. </p><p>Despite seeing these waves of disability as an inevitable consequence of “let er rip” Covid strategy - one thing I did not see coming was how many people would willingly embrace not only ableism - but full on eugenics. </p><p>People in my own life who were previously kind & supportive have become cruel and angry. The masks have been ripped off. They don’t hesitate to tell me that they blame me for the restrictions placed on them in the early days of Covid. </p><p>That they will never again allow their freedoms to be infringed on in the name of protecting the vulnerable. One even went as far as to say “you’ve been sick for years - just die already.” </p><p>People who say these things don’t understand what disabled ppl understand all too well - your health is not a permanent state. </p><p>Everyone will become disabled eventually - some earlier than others. Many who think they’re invulnerable are already vulnerable and don’t even know it </p><p>Yet rather than adapting behaviour and pushing for a new normal that makes the world safe for everyone - most temporarily abled people have instead doubled down on hateful eugenics talking points and want us to stay home forever (or worse - die). It needs to stop. </p><p>Covid is airborne and we all share the air. “You do you” individualism is quite literally killing people. We need to start caring about the air we share as this will lead to a healthier society for everyone. </p><p>Until then we need to mask up. It’s easy, incredibly effective & it might save someone’s life. At the very least you will know you didn’t contribute to another person’s suffering - and you will be drastically reducing your own odds of getting Long Covid. It’s worth it. </p><p><a href="https://www.disabledginger.com/p/i-dont-know-anyone-with-long-covid" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">disabledginger.com/p/i-dont-kn</span><span class="invisible">ow-anyone-with-long-covid</span></a></p><p><a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/sarscov2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sarscov2</span></a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/covidisairborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisairborne</span></a> <a href="https://zeroes.ca/tags/covidisnotover" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisnotover</span></a> <a href="https://zeroes.ca/tags/pandemic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pandemic</span></a> <a href="https://zeroes.ca/tags/publichealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>publichealth</span></a> <a href="https://zeroes.ca/tags/disabilityrights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabilityrights</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ableism</span></a> <a href="https://zeroes.ca/tags/eugenics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eugenics</span></a></p>
DoNoHarm BC<p>Marking Long Covid Awareness Day with <span class="h-card" translate="no"><a href="https://bird.makeup/users/cancovsoc" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>cancovsoc</span></a></span> and allies 🩵🩶🖤 At the Vancouver Art Gallery, hundreds of pillow cases were laid out sharing the stories of people with <a href="https://zeroes.ca/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a>. You can help raise awareness as well - head to <a href="https://covidsociety.ca/priorities/long-covid/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">covidsociety.ca/priorities/lon</span><span class="invisible">g-covid/</span></a> to send a letter calling for policy-makers to make Long Covid a priority! </p><p>[Photos courtesy of <span class="h-card" translate="no"><a href="https://zeroes.ca/@cleanair604" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>cleanair604</span></a></span>]</p><p><a href="https://zeroes.ca/tags/ILCAD2025" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ILCAD2025</span></a> <a href="https://zeroes.ca/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> <a href="https://zeroes.ca/tags/CureLongCovidNow" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CureLongCovidNow</span></a></p>
May Likes Toronto<p>In Feb 2020, I went to New York for work. A month later, I could barely walk to the store across the street. Brain fog got progressively worse. It took me almost a year to start being able to walk minimally again and for the fog to clear. I still remember the day I woke up with mental clarity for the first time in 10 months. 3 years to fully walk long distances again with a rehab program.</p><p>It's <a href="https://beige.party/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a>. I'm mostly functional now. A lot of people aren't. All the local long COVID specialist programs have had their funding dried up. I'm one of the lucky ones who got help, and got better enough to kinda sorta keep going.</p><p>What happens to the people who get long COVID now?</p><p>(This is a thread now.🧵)</p>
Pollinators<p><span class="h-card" translate="no"><a href="https://zeroes.ca/@broadwaybabyto" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>broadwaybabyto</span></a></span> You shared, “First things first, you can wear a mask.” <a href="https://epicure.social/tags/longcovidawarenessday" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovidawarenessday</span></a>, <a href="https://epicure.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a>.</p>
Broadwaybabyto<p>It’s International Long Covid Awareness Day, and my latest article looks at the reasons why people believe they don’t know anyone with Long Covid. </p><p>We desperately need increased visibility into this debilitating chronic illness so that we can raise awareness and fund treatments, mitigations and cures. </p><p>Anyone can get Long Covid. It’s not limited to ‘only the vulnerable’ or those who had a severe initial infection. </p><p>This disease does not discriminate. Even people with asymptomatic initial infections have found themselves disabled by Long Covid. </p><p>It’s time we start processing the trauma of the pandemic and stop living in denial. </p><p>We are in the middle of a mass disabling event, and the longer it takes us to admit that, the more people will be harmed.</p><p>Let’s spread the word that the only way to avoid Long Covid is to avoid getting Covid in the first place. </p><p>Wear a mask. Stay home when sick. Clean and ventilate the air. </p><p>When we all agree to care about the air we share, we can begin to bring about real change.</p><p><a href="https://www.disabledginger.com/p/i-dont-know-anyone-with-long-covid" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">disabledginger.com/p/i-dont-kn</span><span class="invisible">ow-anyone-with-long-covid</span></a></p><p><a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/longcovidawarenessday" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovidawarenessday</span></a> <a href="https://zeroes.ca/tags/covidisairborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisairborne</span></a> <a href="https://zeroes.ca/tags/covidisnotover" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisnotover</span></a> <a href="https://zeroes.ca/tags/sarscov2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sarscov2</span></a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/wearamask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>wearamask</span></a></p>
Bass #AlleBurgers #EcoHumanist<p><span class="h-card" translate="no"><a href="https://mstdn.social/@VivienneMatthiesBoon" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>VivienneMatthiesBoon</span></a></span> op X schreef:</p><p>Begrip van een <a href="https://mastodon.nl/tags/ministerVWS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ministerVWS</span></a><br>die op <a href="https://mastodon.nl/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> zorg bezuinigd heeft ... dat zegt naar mijn mening al meer dan genoeg. We hebben helemaal niets aan het hieronder genoemde begrip of empathie als die niet verbonden wordt aan institutionele solidariteit. </p><p>🧵<a href="https://threadreaderapp.com/thread/1900869219694113244.html" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">threadreaderapp.com/thread/190</span><span class="invisible">0869219694113244.html</span></a></p><p><a href="https://mastodon.nl/tags/LongcovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongcovidAwarenessDay</span></a> <a href="https://mastodon.nl/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://mastodon.nl/tags/PAIS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PAIS</span></a> <a href="https://mastodon.nl/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span></p>
Trending<p><a href="https://mastodon.bot/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> is now trending across Mastodon</p>
Jen<p>I should probably post something meaningful and profound for <a href="https://geekdom.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> but I'm too tired after spending every spoon on my son's birthday.</p><p>Instead, inspired by someone else inviting people to <a href="https://geekdom.social/tags/SitTogether" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SitTogether</span></a>, I'm just going to suggest we adopt Sit Down by James as our anthem.</p><p>"It's hard to carry on<br>When you feel all alone<br>Now I've swung back down again<br>It's worse than it was before"</p><p>Sit down next to me.<br>Sit down in sympathy.</p><p><a href="https://geekdom.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://geekdom.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://geekdom.social/tags/Solidarity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Solidarity</span></a></p>
ahimsa<p>"Live blog: International demonstrations ignite for Long COVID Awareness Day"</p><p><a href="https://thesicktimes.org/2025/03/15/international-demonstrations-ignite-for-long-covid-awareness-day/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">thesicktimes.org/2025/03/15/in</span><span class="invisible">ternational-demonstrations-ignite-for-long-covid-awareness-day/</span></a></p><p>"Demonstrations for International Long COVID Awareness Day have sparked around the globe. Whether raising awareness about the disease in public or from their homes, people with Long COVID and their allies have raised their voices to demand recognition, research, treatments, support, and prevention of COVID-19 …"</p><p><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <a href="https://disabled.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> <a href="https://disabled.social/tags/Protest" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Protest</span></a></p>
ahimsa<p>More quotes:</p><p>"Check out other organizations that fight for Long COVID day in and day out including: </p><p>Black Long COVID Experience, COVID-19 Longhaulers Advocacy Project, Long COVID Families and Patient-led Research Collaborative, among others! </p><p>Share information, check out these groups, donate today!</p><p>Long COVID research care and treatments matter for everyone."</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p>3/3</p><p><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/Awareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Awareness</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://disabled.social/tags/StopRestPace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>StopRestPace</span></a> <a href="https://disabled.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a></p>
ahimsa<p><a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEAction</span></a> has been fighting to protect the Long COVID Advisory Committee at HHS, which was recently dismantled. </p><p>In this video, five patient-advocates read an open letter to Health and Human Services Secretary Robert F. Kennedy Jr.</p><p><a href="https://www.youtube.com/watch?v=hQn3kqyAT6w" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">youtube.com/watch?v=hQn3kqyAT6</span><span class="invisible">w</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p>2/3</p><p><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/Awareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Awareness</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://disabled.social/tags/StopRestPace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>StopRestPace</span></a> <a href="https://disabled.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a></p>
ahimsa<p>From <a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEAction</span></a>: </p><p>Long COVID Awareness Day<br>March 15</p><p><a href="https://www.meaction.net/2025/03/14/long-covid-awareness-day/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">meaction.net/2025/03/14/long-c</span><span class="invisible">ovid-awareness-day/</span></a></p><p>"Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by <a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEAction</span></a> volunteers today."</p><p>Link to video in next post</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p>1/3</p><p><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/Awareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Awareness</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://disabled.social/tags/StopRestPace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>StopRestPace</span></a> <a href="https://disabled.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a></p>
Johan Moir (Friendica)<p>Today is <a href="https://friendica.world/search?tag=LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a>.</p><p>Tomorrow marks 5 years since I got sick. As a patient, you often need to stay focused in the present, adapting your days and life accordingly, but it does happen that you reflect on how different life looks now compared to then. On days like this, it feels like a good opportunity to share a bit and truly show how this virus affects people, especially to raise awareness about long COVID/post-COVID. So here are some info in bullet points:</p><p>• As a freelance musician, it was uncommon for me to be home for more than some weeks at a time – Now it can take weeks before I even get outside my door.</p><p>• I used to travel around the world with my double bass – Now it’s myself that I roll around (wheelchair indoors, electric wheelchair outdoors).</p><p>• Throughout my life, I have worked in care and taking care of people – Now I am the one who needs home-care and assistance.</p><p>• I used to be quite an extreme omnivore (as some can attest to🙃) – Now I can count the foods/ingredients I can tolerate on both hands.</p><p>• Before I got sick, I was classified as overweight according to BMI – Now I struggle to stay just above the underweight line.</p><p>• Mobility aids, vasodilator medication, home care, and senior discounts were probably not on my "bucket list" to check off before I turned 40 – But I managed to check them all off.</p><p>• I did have some medications before I got COVID, but now I have 15(!) different medications to help me stay relatively stable from symptoms related to my heart, lungs/airways, digestive issues, to counteract allergic reactions, and to assist with mental and physical stamina.</p><p>• I rarely needed to rest to get through the days – Now entire days are dedicated to resting and maintaining a routine to manage some simple tasks, things that were previously taken for granted and not even considered strenuous.</p><p>• It didn’t go many days without me playing the double bass – After trying a bit in the first half of the year I got sick, I can now count on one hand how many times I’ve even plucked a few notes on it since then.</p><p>• Playing concerts and attending colleagues' concerts was a big part of my life, both professionally and socially – The number of concerts I’ve attended in the last 5 years can also be counted on one hand.</p><p>• I used to experiment a bit with sinewaves and psychoacoustics – Now it’s the tinnitus in my head that provides the sinewaves.</p><p>• I used to find it relatively hard to motivate myself to exercise regularly – Now I would do anything just for my body to respond normally to even the smallest, simplest movement exercises (For those who don’t know, I tried various kinds of "training" in the first 3 years, but despite adjustments and very light exercises while lying down, I eventually had to realize that it just makes me worse).</p><p>"You have to be healthy to be able to endure being sick," was a phrase I had heard before I got sick, but I didn’t really understand its meaning until I experienced how you have to fight for everything (And I had no direct "illusions" about how healthcare works, due to experience both professionally and through family).</p><p>I want to reiterate that this text is mainly to show how different the worlds then and now are. I am "used" to how my situation looks and live accordingly. I often describe my situation as "fairly stable at a very low level."</p><p>I also want to add that I am truly not alone. Fresh statistics from the swedish polling institute SIFO today show that over 280,000 people are estimated to have post-COVID in Sweden. Since it is an umbrella diagnosis, the disease picture varies for many. But the idea that it’s just a bit of "lingering symptoms" is really not true, and I know (unfortunately) several people who have significantly worsened recently, 5 years into their illness, and who have had to be hospitalized lately.</p><p>We need to take this more seriously!</p><p>Do you feel like you want to do something for us with Post-COVID?<br>If you live in Sweden, Please consider donating to the Swedish COVID Association (Svenska Covidföreningen), which does an absolutely ENORMOUS job.</p><p>Swish: 123 217 81 35</p><p>If you live somewhere else, find relevant patient organisations and advocacys in your are to connect with and support.</p><p>Do you feel you can do more? Email a political decision-maker, try to influence in various ways. Spread information and knowledge! Etc., etc.</p><p>Thank you to those who took the time to read this post! 🙏♥️</p><p><a href="https://friendica.world/search?tag=postcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>postcovid</span></a><br><a href="https://friendica.world/search?tag=longcovidawarerness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovidawarerness</span></a><br><a href="https://friendica.world/search?tag=longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a><br><a href="https://friendica.world/search?tag=disabillity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabillity</span></a><br><a href="https://friendica.world/search?tag=longtermsickness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longtermsickness</span></a></p>
Grymt<p>Het is vandaag <a href="https://social.trom.tf/search?tag=LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a>.</p><p><b>Alles wat je niet wilt weten over <a href="https://social.trom.tf/search?tag=COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a>:</b></p><p><br>- <b>COVID is <a href="https://social.trom.tf/search?tag=airborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>airborne</span></a></b>: het verspreid zich met name via minuscule zwevende druppeltjes door de lucht. Die kunnen uren in een kamer blijven hangen, en blijven dan besmettelijk. Afstand houden heeft alleen effect op grote druppels, maar niet op deze aerosolen.</p><p>- Covid is <b>niet "mild"</b>.</p><p>- Infectieschade is <b>cumulatief</b>.</p><p>- Het maakt je <b>vatbaarder voor andere infecties</b> en ziekten.</p><p>- Er is <b>geen genezing voor <a href="https://social.trom.tf/search?tag=longCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longCOVID</span></a></b>.</p><p>- De <a href="https://social.trom.tf/search?tag=pandemie" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pandemie</span></a> is nog <b>niet voorbij</b>.</p><p>- Het dragen van een <b>FFP2 <a href="https://social.trom.tf/search?tag=masker" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>masker</span></a></b> vermindert de overdracht wel enorm, tot 99%.</p><p>- <b>Vaccineren</b> & boosteren blijft nodig. Als je al meermaals besmet bent geraakt zonder long covid te krijgen biedt dat helaas geen enkele garantie voor de volgende keer. Vaccinatie vermindert je kans op long covid met de helft voor meerdere maanden (en het slaat nergens op dat je maar eens in het jaar een prik kunt krijgen)</p><p>- <b>Als je covid krijgt</b> is het ongelofelijk belangrijk dat je:</p><p>1. <b>Thuis</b> blijft en geen anderen besmet (of alleen met een FFP2 masker anderen opzoekt) - het kan voor mensen met slechte afweer nog steeds dodelijk zijn, of je geliefden levenslang long covid bezorgen.</p><p>2. <b>Rustig uitziekt</b>.<br>We weten nog steeds niet precies waarom de één long covid krijgt en de ander niet, maar van één mechanisme zijn we zeker: als je nog niet goed beter bent en dan toch al over je grenzen gaat, is dat de beste manier om long covid te ontwikkelen. Dit is de reden dat erg veel super gezonde topsporters long covid krijgen.</p><p>- Van de mensen die long covid krijgen, ontwikkelt ongeveer 25% de ernstigste vorm, met <b>ME</b>. <a href="https://social.trom.tf/search?tag=ME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ME</span></a> is een multisysteemziekte die je ook op kunt lopen van bijvoorbeeld Pfeiffer of Q-koorts.<br>Mensen met ME raken totaal uitgeput van de kleinste prikkels. Het is een soort <b>straf op leven</b>: alles wat leven de moeite waard maakt put je zo ontzettend uit dat je er uren, dagen of zelfs jaren ziek van wordt, alsof je een zware griep hebt.<br>Ongeveer de helft van de mensen met ME kan nooit meer werken, een kwart is nagenoeg of helemaal bedlegerig.</p><p>Dat wil je niet meemaken.</p><p>Het gaat bij die laatste, zeer ernstig zieke groep mensen om tienduizenden. Een groot deel van hen wordt nooit meer beter.</p><p><b>Je denkt dat ze niet bestaan omdat je ze niet ziet: ze zitten opgesloten in hun huis, omringd door een vijandige samenleving die hun ziekte het liefst negeert of zelfs agressief ontkent.</b></p><p>Kijken we naar het totaal van mensen met long covid, inclusief mildere vormen (die vaak met veel rust en maanden tot jaren uitzitten, nog wel genezen) dan hebben we het over honderdduizenden Nederlanders.</p><p>Nu de overheid heeft besloten om de ernst van covid simpelweg te ontkennen, en de honderdduizenden mensen met long covid af te schepen met een fooi voor een paar long covidklinieken die slechts genoeg financiën hebben om enkele tientallen patiënten te ondersteunen (en een methode voor genezing is er überhaupt niet), is er maar één ding wat je kunt doen.</p><p><b>Probeer zo min mogelijk besmet te raken</b>, en als je toch besmet raakt, besmet dan geen anderen en ziek zo rustig mogelijk uit.</p><p>Wat helpt om besmetting te voorkomen is:<br>- goed aansluitende <a href="https://social.trom.tf/search?tag=FFP2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>FFP2</span></a> maskers<br>- mensen in de <b>buitenlucht</b> ontmoeten in plaats van binnen<br>- luchtzuivering met <b>HEPA filters</b> voor binnen (je kunt al een mobiel stil apparaat kopen voor in je huiskamer vanaf een euro of 85)<br>- een tip waar al wel bewijs voor is, maar waar nog meer onderzoek naar moet worden gedaan: bepaalde neussprays met algen blokkeren de receptoren in je neus, waardoor covid maar ook verkoudheid en griep veel minder kans hebben om je te besmetten. In Nederland is dit middel te bestellen onder de merknaam <b>Algovir</b>.<br>- Hoe meer van deze tips je tegelijkertijd inzet, hoe minder kans je op besmetting hebt.</p><p>Op dit moment is het aantal besmettingen in Nederland gelukkig heel laag, maar dat blijft niet zo. Over een paar weken of een maand komt er weer een nieuwe variant, die de getallen omhoog zal jagen. Dat is geen doomsday prediking, maar gewoon hoe evolutie werkt.</p><p>Zo lang de wereld niets doet tegen verspreiding, zal covid blijven muteren. <b>Dat elke nieuwe covid variant minder heftig is, is een sprookje.</b> Of een nieuwe variant zwaarder is of niet, is volstrekt random. Het enige wat je zeker weet, is dat als er een nieuwe variant dominant wordt, dat deze besmettelijker is dan de vorige. Anders zou die namelijk niet dominant worden.</p><p>Heel, heel veel warmte voor de mensen met long covid. De één heeft slechts maanden last, de ander is levenslang aan huis gebonden, of zelfs aan bed. De één is slechts doodmoe en ruikt bijvoorbeeld niets meer, de ander kan niet eens rechtop gaan zitten zonder flauw te vallen. De één wordt beter, de ander niet.<br>Juist de ernstigste vormen hebben helaas minder kans om beter te worden, hoewel ik ook mensen ken met heel zware vormen, jarenlang, die daarna toch deels opknapten, soms tijdelijk, maar soms ook (naar het zich laat aanzien) definitief.</p><p><b>Hou vol, lieverds.</b></p>
Sarah dreams of beans<p>I'm pretty into this framing of "new information about silent health damage from every covid infection", even though it is not new or very silent. I hope it helps some covid deniers rejoin the evidence-based world. Nice one, Quirks and Quarks.</p><p><a href="https://friendhole.social/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <a href="https://friendhole.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a></p>
Sarah dreams of beans<p>Huge shout out to Bob McDonald for asking David Putrino all the good naive questions about covid on mainstream public radio. Starts at 19:30 or scroll down to that section.</p><p><a href="https://www.cbc.ca/radio/quirks/mar-15-the-silent-long-term-effects-of-covid-and-more-1.7483146" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">cbc.ca/radio/quirks/mar-15-the</span><span class="invisible">-silent-long-term-effects-of-covid-and-more-1.7483146</span></a></p><p><a href="https://friendhole.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> <a href="https://friendhole.social/tags/QuirksAndQuarks" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>QuirksAndQuarks</span></a> <a href="https://friendhole.social/tags/CBC" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CBC</span></a> <a href="https://friendhole.social/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a></p>
Donate A Mask<p>Today, March 15, is International <a href="https://zeroes.ca/tags/LongCOVIDAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVIDAwarenessDay</span></a>.<br>How can you take action? 📢<br>- Talking about COVID and <a href="https://zeroes.ca/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCOVID</span></a> in the present tense.<br>- Wearing a respirator mask to protect yourself and others. Find one online in our fundraising store: <a href="https://buymask.ca" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">buymask.ca</span><span class="invisible"></span></a>. 😷<br>- Donating to Donate A Mask so that we can continue sending respirator masks to people in Canada who need them. 🇨🇦 <a href="https://donatemask.ca/donate" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">donatemask.ca/donate</span><span class="invisible"></span></a><br><a href="https://zeroes.ca/tags/CureLongCovidNow" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CureLongCovidNow</span></a> <a href="https://zeroes.ca/tags/LongCovidAwareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwareness</span></a> <a href="https://zeroes.ca/tags/MaskUp" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MaskUp</span></a> <a href="https://zeroes.ca/tags/Donate" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Donate</span></a></p>
Valerie Roney<p>It's <a href="https://disabled.social/tags/longCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longCovidAwarenessDay</span></a> and this toot from a year ago is just as accurate now, sadly. </p><p>I have adapted to working around it, but covid left a permanent Injury to my brain. I experience the world and communicate differently now. Everything is harder. </p><p><a href="https://disabled.social/@vlrny/111958637055843818" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">disabled.social/@vlrny/1119586</span><span class="invisible">37055843818</span></a></p>
Yogi Jaeger<p>I have <a href="https://spore.social/tags/MCAS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MCAS</span></a> and <a href="https://spore.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> since January 2024, triggered by an <a href="https://spore.social/tags/RSV" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>RSV</span></a> infection that should just have been a cold at my age. But it wasn't since I had <a href="https://spore.social/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a> in 2021...</p><p>I've been ill for<br>- more than a year, or<br>- more than 440 days.</p><p>Stop the spread. <br>Millions are missing worldwide.<br><a href="https://spore.social/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a> is not over.</p><p><a href="https://spore.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a></p>
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